Symptoms of Alzheimer’s disease include more than memory loss. People with Alzheimer’s have trouble communicating, learning, thinking and reasoning and the symptoms get worse over time. That may leave you in a position of providing ever more care and support for your loved one.
Caregiving is a rewarding act of love, but it’s not always easy. Depending on the support your loved one needs, caregiving can strain you physically and emotionally. Even put your own health at risk. So how do you know if you are experiencing caregiver stress? Ask yourself the following:
- Are you denying/ignoring symptoms of the disease and their impact on your loved one?
- Are you angry at your loved one for not being himself?
- Are you angry that no cure for Alzheimer’s exists or that others around you don’t understand what’s happening?
- Are you depressed?
- Are you exhausted?
- Are you irritable?
- Are you having trouble sleeping?
- Are you having trouble concentrating?
- Are you avoiding friends or social activities that once brought you pleasure?
- Are you worried about facing another day and/or about dealing with the future?
- Are you having health problems that are beginning to take a mental and physical toll on you?


All of the above can be signs of caregiver stress. It’s important that you maintain your health and well-being so you can be there to care for your loved one. Try the following to help manage caregiver stress:
- Get a diagnosis early for your loved one. It can be easy to explain away changing or unusual behavior when someone seems physically healthy. But uncertainty is stressful. Consult a doctor when you see changes in memory, mood or behavior. Don’t delay. Some symptoms are treatable, and your doctor can help you better anticipate future needs and clarify the unknown.
- Get help. Trying to do everything by yourself will leave you exhausted. Seek the support of family, friends and community resources. Contact your local Alzheimer’s Association for help finding services such as adult day programs, in-home assistance, visiting nurses and meal delivery – a few of the many services that can help you manage daily tasks.
- Accept changes as they occur. People with Alzheimer’s change and so do their needs. Accept that your loved one may require care beyond what you can provide on your own. Accept the support and assistance of those around you.
- Slow your communication. Trouble communicating is one of the symptoms of Alzheimer’s, but flexibly, patience and a few simple rules can help. Address your loved one by her name. Speak slowly using short and simple words. Focus on emotions not facts. Use nonverbal communication like pointing or gesturing. Break instructions down into single steps and give her plenty of time to respond.
- Take care of yourself. Watch your diet, exercise and get plenty of rest. Join an Alzheimer’s support group to learn from and share with others in similar situations. Take time to get regular checkups and watch for symptoms of caregiver stress. Above all, seek help. You can’t care for your loved one if you are sick yourself.
- Give yourself credit, not guilt. Know that the care you provide makes a difference and understand you are doing the best you can. You may feel guilty because you can’t do more, but your role is to see that your loved one is safe and well cared for, by you or others with the ability to do so.
For help accessing resources, assistance coping with caregiver stress, and connection to local caregiver workshops and support groups call the Alzheimer’s Association’s 24/7 Helpline at (800) 272-3900. Translators are available.
Citation: Ball, Mary. “Know the Signs of Caregiver Stress and What to Do about It.” U-T San Diego. http://www.utsandiego.com/news/2012/oct/23/know-the-signs-of-caregiver-stress-and-what-to-do






October 25th, 2012
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I have been at this Alz caregiving gig for almost a dozen years. I have read too many of these articles…WHICH are in essence MORE things for us to figure out so we can keep DOING IT SOME MORE.
THIS IS WHAT IS NEEDED…
Instead of telling us to get more information, for US to arrange for other people to help out…for US to take care of ourselves…this boilerplate rehashed article…just read another one similar… Caregiver: Take Care of Thyself…
Someone in one of these organizations needs to seriously get REAL help for the family caregiver. This include:
* Govt grants, direct $$ aide to the few who are frontline caregivers.
* Revise the terminology of “formal vs informal support.” In studies, which then justify govt spending, formal support = those who get paid (doctors, CNAs, therapists, nursing homes, senior day care). Guess who “informal support” is? Those who do NOT get paid, the family caregiver. Thus defined, the family caregiver will not by definition get be paid by govt stipend or grant. They will be served by being provided support groups and brochures (offered by people who DO get paid, those formal support people.)
* Offer full SS quarterly qualification for caregiving work, and perhaps access to early social security benefits and Medicare.
Recognize the signs of caregiver stress? So many studies about this, I was even a guinea pig in a study, and know what these studies do to help? Nada! The problem is thrown back at the caregiver, who is too busy caregiving to do the solutions.
Ask overwhelmed caregivers what help they really want and really need.
Carol,
Thank you for your comment and suggestions. I understand your frustration. These articles are meant to help, although the help is minimal, they are written with the best intention to help caregivers.
Here at Endear we have developed a model for a scholarship program to cover many of the bullet points you describe. Our problem is obtaining a sponsor for the scholarships. We have worked with grant writers only to find out that we have almost no chance of securing a grant. This is still something we are pursuing and hope to have a program in place within the next year.
Unfortunately, assistance for families of those with Alzheimer’s disease and related dementias(ADRD) is handled at the state level with some federal funding.
I was fortunate to be a part of the task force that wrote the proposed state plan for Alzheimer’s disease and related dementias for Oregon. The plan includes goals to provide resources for families along with a number of other key line items. The plan is currently being reviewed by Oregon legislature.
Oregon’s plan is one of 25 existing state Alzheimer’s plans around the nation. I urge you to check your local Alzheimer’s Association chapter. They should have more information and possibly some free care resources.
Carol, I don’t know what state you live in, so I can not recommend local resources for you. If you would like me to email you some information, I would be happy to do so. I have your email address, simply respond to this post and give me your permission.
We are here to help people like you, Carol. Please let us know what we can do.
Best,
Carlos Barrios, Founder Endear For Alzheimer’s